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Exploring Neurodiversity

Tools, Knowledge & Practice by NeuroXYZ

XyZ @ NeuroXYZ / NeuroBridge

About Me

XyZ

  • Autistic adult
  • Creator & maintainer of NeuroXYZ (solo, hobby project)
  • Neurodiversity advocate
  • Interested in disability justice & neurodivergent Marxism
  • Recent hobby: 3D printing

Related Projects

  • NeuroXYZ — Tools + Wiki knowledge platform
  • NeuroBridge (脑脑空间) — Decentralized ND community
NeuroBridge

Today's talk: Tools · Knowledge · Practice · Localization

Why NeuroXYZ?

Background

  • Systematic neurodiversity resources in Simplified Chinese remain scarce
    — with thanks to pioneers like Qingshan Neuro (青衫Neuro)
  • Existing self-report tools are mostly in English / paid or have access barriers
  • Wanted to build a free, open, Simplified Chinese toolkit

Core Principles

  • De-commercialized — free and open
  • Simplified Chinese — translated + localized
  • Neurodiversity-affirming — presenting multiple perspectives
30+
Self-Report Tools
240+
Wiki Pages
2
Platforms (Web + Mini Program)

Personal website · Non-commercial · neuroxyz.cn

Design Philosophy & Principles

Knowledge Stance

  • Grounded in the neurodiversity paradigm, critically reflecting on the normativity paradigm
  • Tools are for exploration, not diagnosis
  • Neurodiversity-affirming while not ignoring the disability perspective
  • Attention to systemic issues — structural inequality and historical problems

Design Principles

  • Transparency — sources, validity, and verification status are labeled
  • De-authoritative — not "the expert tells you the answer"
  • Accessibility — free, in Chinese, no registration required
  • Autonomy — users explore and choose for themselves

Stay vigilant about two things:
"Weaponized heterogeneity" — using "different groups have different needs" to dissolve collective demands
Neurodiversity-Lite — superficial appropriation of terminology, depoliticized mainstream co-optation

Three Main Sections

Tests

Autism Core · Related
Sensory · Other ND-Related
Other Traits · Emotion & Cognition

30+ self-report tools · instant results

Wiki

240+ pages of systematic knowledge
6 major sections · reading pathways
Author database · reference library

From foundations to critique · from history to practice

Resources

Emotion visualization tools
ND burnout toolkit
External links & materials

Free · no registration · Simplified Chinese

Wiki Knowledge Base

240+
Pages
6
Major Sections
89
Scholars / Authors
4
Reading Entry Points

Reading Pathways

Just heard about it · Wondering if I'm ND · Took a test, want to understand the results · Academic research
Full reading roadmap →

Knowledge Network

Interactive knowledge graph · Collaboration guide

Bidirectional links · Author database · Reference library

Robert Chapman, Patrick Dwyer, Nick Walker, Steven Kapp, and 85+ others

Emotional Support Tools

More than questionnaires — free, no-registration practical tools on the site

Emotion Wheel

Interactive emotion visualization
Explore the layers and connections of emotions
Helps with naming and expressing feelings

emowheel.html

Emotion First-Aid Kit

5 evidence-based grounding techniques
Step-by-step guidance for urgent moments
Come back to the present when emotions surge

emotion-kit.html

Emotion Regulation Decision Tree

Identify needs → match strategies
Designed for children and adolescents
Find regulation methods during distress

emotree.html

All free · no registration · browser-based · also available in the Mini Program
More tools at neuroxyz.cn — explore freely

WeChat Mini Program — NeuroXYZ

Why a Mini Program?

  • Personal websites in China cannot collect user data ← regulatory constraints
  • WeChat cloud storage + long-term tracking, results can be reviewed and compared over time
  • Tabs: Home · Tools · Profile

ASD Profile

Multi-test radar chart integration · save as image

Portable Toolkit

Grounding · Emotion wheel · Decision tree · ND burnout

Assessment History

Result tracking & comparison · privacy controls

All Tests

30+ tools · search by category

Challenges: Translation & Localization

Beyond Language Translation

  • Sarcasm/idiom items — different meanings across cultural contexts
  • Social situation items — expression and understanding vary
  • Lack of localized norm data
  • Cross-cultural psychometric property differences

Cultural Impact on Measurement Structure

Take CAT-Q as an example:

  • Western: higher camouflaging → poorer mental health (negative correlation)
  • Japan (Oshima et al. 2024) / Taiwan (Chun-Hao Liu et al. 2026):
    non-linear relationship — moderate camouflaging may be adaptive in East Asian cultures

→ Factor structure may differ across cultures; can't simply apply original dimensions

It's not "translate and done" — tools need re-validation in Chinese populations

Translation Issues: Real Examples

AQ — Color Conformity & Other Problems

Some translations render "making up stories" as "编瞎话" (fabricating lies)
"编瞎话" carries moral stigma in Chinese (lying/dishonesty)
The original is closer to fiction-making, morally neutral
→ If translation introduces leading connotations, it may alter measurement properties

AQ translation issue screenshot

RAADS-R — Mistranslated Items

Some versions contain completely mistranslated items
Partially incorrect items → scoring confusion → misleading results

RAADS-R translation issue screenshot

Be cautious: don't blindly trust any single translation (including mine) — cross-reference with the original and verified versions, stay critical

Self-Report Positive ≠ Diagnosis

Assuming 10% ADHD prevalence in the population

100 people · one dot each

10 ADHD 90 non-ADHD


↓ ASRS screening ↓

Specificity 0.71 · Sensitivity 1.0 → 36 test positive

True positives ~10 (1.0*100*10%)
False positives ~26 (0.29*100*90%)
Negatives ~64 (0.71*100*90%)

Example: ASRS v1.1

The most commonly used ADHD screening tool
Specificity ~0.71 — 29% of non-ADHD individuals also screen positive
Sensitivity 1.0 — almost never misses ADHD
(Hines, King & Curry, 2012)

Even if ADHD prevalence is as high as 10%,
out of 100 who screen positive
~72%
are NOT ADHD

Screening ≠ diagnosis
In low-prevalence populations
false positive rates are extremely high

Challenges as a Solo Advocate

Validation Dilemma

  • Difficult to conduct standardized translation-backtranslation procedures
  • Translations largely lack formal psychometric validation
  • Data collection is hard — insufficient sample sizes, self-selection bias

Copyright Limitations

  • Many classic instruments are proprietary/closed copyright
  • Can only use CC-BY and other open-access tools
  • Respecting creators, supporting open science

Domestic Compliance

  • Complex regulatory constraints: ICP filing
  • Individual developers face category restrictions
  • Strict limits on data collection
  • → WeChat Cloud hosting as a viable path

Academic Paywalls

  • Psychometric literature locked behind paywalls
  • Individuals without institutional access must pay out of pocket
  • Closed research outcomes are hard to turn into open tools
  • → Need more open-access resources

Format Limitations

  • At its core: a self-report questionnaire engine
  • Cannot do structured interviews or behavioral assessments
  • Subjective bias, metacognitive and language limitations
  • → Future direction: task-based tools

Being transparent: most translations on NeuroXYZ have not yet undergone formal validation; individual capacity is limited

Progress & Future Directions

CATI Preliminary Validation

  • NeuroBridge conference paper — workplace double empathy
  • ~300-person sample validating the Chinese CATI, good performance
  • No significant difference in CATI scores between self-diagnosed and formally diagnosed ASD
  • → Relevant to the "self-diagnosis" debate

In Progress

  • Collaborating with mainstream academics to validate CAT-Q and RAADS-R
  • Seeking more collaborative validation for additional tools
  • Platform labeling of translation sources and validation status
  • Open discussion: community translation + academic validation

Near-Term Plans

  • Localized tool validation studies
  • Exploring more open tools
  • Continuing Wiki content expansion
  • Mini Program feature improvements

How to Get Involved

  • Use & give feedback
  • Contribute Wiki content — github.com/xyzhou0323/wiki
  • Academic collaboration — reach out for validation studies
  • Spread the word — share with those who might benefit
NeuroXYZ

Thank You

Questions & Discussion Welcome

neuroxyz.cn
NeuroXYZ工具包
Xiaohongshu @XyZ
XyZ@NeuroBridge.cn
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